When explaining MCAD to people, sometimes I feel like people look at me like i'm over protective and that everything will be okay. It is a hard concept to understand that my perfect, normal looking child is okay. What does a Fatty Acid Oxidation Disorder look like? It looks just like you and me...
When people see me I probably always have my baby attached to my boob...I hear your feeding him too much, why don't you try to stretch him?, and so on. It takes energy when your body temperature goes up and down. So when my baby goes from in the house then,when he gets in the car sweats in his car seat,gets out and back in the house...he has used a lot of energy and already used up quite a bit.
So how does MCAD look?
Wednesday, July 23, 2014
Over protective?
Wednesday, July 9, 2014
Awareness
July is fatty acid oxidation awareness month, MCAD isn't the only metabolic deficiency out there many children suffer from some worse then Zion. Remember those who we have lost, and grieve for their parents. Make awareness for this silent disease.
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